Niko was supposed to have his two hour speech evaluation tomorrow, but he (surprise!) came down with a cold. I'm waiting impatiently by the phone in order to reschedule it. I'm feeling out pages and pages of paperwork...things that I've forgotten. How many times has he been hospitalized? Where? How long for each time? What for?
Thankfully I have this blog! It's my journal. It keeps me straight, because otherwise I couldn't remember anything.
Nina and I went to the doctor today. That woman is a sadist! I've been working out really well lately, but I'm still not feeling very well. I went to request a sleep study, but now I have a full physical, fasting blood test, heart EKG and chest x-ray in my immediate future.
"How are your sugars? Are you taking your meds?"
"I....uh...er, no."
I was soundly rebuked, and after TWO HOURS there, managed to crawl away feeling quite chastised. I complained to Luke about what a Nazi the doctor was, and imagine my incredulity that he was firmly on her side! The traitor! ;)
Good news! I sold a short story to a really big venue! I don't want to announce it publicly until everything gets signed, but it's my biggest sale yet. The best part was that it was an invite-only antho, and not only was the editor kind enough to invite me, but I worked
hard (Luke will attest) and it paid off. I'm very, very happy! You should be able to walk into practically any bookstore and pick this one up. More details later.
Also, I have decided to write a book about Niko and WS. There are many reasons for this. I write; that's what I do. It's how I process. But more importantly, I met with Noel the other day at the mall. Noel is a fellow MS mom, and it was such a pleasure to talk to her! Not only is she a wonderfully beautiful person, but she is strong. We talked about all of these things that we understood (keeping everything high so it isn't torn apart, for example) but most people didn't. We talked about friends and relatives who don't really "get the Williams thing". I want this to be a book that explains. I want it to be a book that you hand to your mother and say, "Here, Mom, I love you. This will explain my child." It will be sad, of course, because our lives have sadness. But it will be hopeful and delicate and, hopefully, a thing of beauty. I've thought about it for a long time, but I just finished two important projects, and it's time to start this one. I feel like taking a deep breath before I start. Wish me luck. Please pray that I'll do it justice.
All right. Back to filling out more paperwork. Have a lovely day, my friends.
