I can't believe it happened! The biggest, craziest, most insane statistical fluke that could ever happened has occurred! I am besides myself!
I received a phone call from my mother last night. We're from a small town, and usually identify ourselves by our County because at least maybe somebody has heard of THAT. People in our own state don't recognize the name of our teeny, tiny little towns! Well, while Mom was at work, she started talking to somebody who lives just ten miles away from where I grew up, and this person has a child a year younger than Niko with Williams! My mother, bless her heart, flew over to her desk and came back with a picture of Niko. "My grandson has Williams!" she said. The girl was shocked. Mom was shocked. I was shocked! Just think! This obscure little syndrome that nobody has ever heard of...has struck twice in the same area! I'm thrilled. I hope we have a chance to hook up at some point and talk about some of the things that our fabulous kids are going through. Does her child have heart problems? Hypercalcemia? She and my mother already established her child's pointy teeth and tendency to bite. I called Mom up this morning and asked her to suggest what we call the Anti-Bite necklace. It's a thick cord that Niko wears around his neck with a teething toy on it like a pendant. That way he always has something to chew...besides the tender flesh of others. This is cloud nine, people. This gives me much hope.
Friday, October 13, 2006
Well, we moved in a flurry of frenzied activity in July. And after living in FOUR hotels and THREE apartments, we have finally committed, at least for ten months, to the tiny, ancient little apartment that we're living in now. Our dishes don't fit in the narrow cupboards. The first time I did laundry the dryer scorched holes in our clothes. The toilet automatically flushes itself about once an hour...very disconcerting. But we're here, and I think we'll be happy, and Luke loves his new, mysterious job. He comes home just beaming. Niko and I...not so much. We're still traversing through towers of half-packed boxes, trying in vain to find things like my address book, Niko's toys...our telephone. But we're making headway every day, and this Sunday we'll go to our new church for the first time and hopefully hook in with some buddies. It's killing Niko not to have our friends fawn all over him. He runs up to every effeminate guy he sees, thinking it's Jason, but alas! He's a lone boy with nobody but Mommy and Daddy for company, and even three year olds know that's not cool! I'm trying desperately to get him into a hospital (losing weight, gagging on familiar foods, scratching himself bloody) but it's not working yet. I'm also girding up my loins to start the Preschool Crusade again, but I don't think I'm mentally strong enough yet! The good news is that I signed up for a creative writing course, which I'm thrilled about. I've been doing quite a bit of writing lately, and it feels great. I also signed up for NaNoWriMo...that's National Novel Writing Month, for those of you sane enough not to know what it is. You know me and a challenge. 50,000 words in a month? Heck ya!